Archives

Three month update!

Hello everyone,

I am terribly sorry that I have not updated for quite some time. I have traveled quite a bit and have wonderful news to share!

This post will be a list of goals and milestones that I have reached. I will expand on each goal in its own post!

Order of Milestones:

May 6th-17th 2013 Initial two-week expedited treatment: I left center at 70% improvement (I flew down in my wheelchair and on the trip back home I pushed my wheelchair with my suitcases in the seat)

June 6th 2013: First (0) on symptom chart!

June 8th 2013: Wean off Mestinon (took 9 days)

June 14th 2013: Completed exercise protocol goal of  22 minute workout on both recumbent bike and rowing for total of 44 minutes of exercise

June 16th 2013: Start weaning off Midodrine (took three weeks)

June 18-23 2013: Trip to NYC and (flying without wheelchair)

June 21st 2013: Rented bike and rode 6 miles all around Central Park in under 2 hours! 🙂

June 24th-31st 2013: Vacation and 2 days of rest from NYC trip

July 1-5th 2013: Follow-up week at POTS Treatment Center in Dallas, TX (Due to the 4th of July I decided to come for 4 sessions instead of 5. I did not want to double up on one day because I did not want to over do it. ) I left the center at 90% improvement!

July 8th 2013: Personal decision to stop several medications ( Florinef, Glycopyrrolate, Pro-biotic, Omeprozole, Flexeril,cephalexin) 0 adverse effects 🙂

July 19th 2013: Take college make-up course exam and PASSED!

July 20th 2013: 95% Improvement. I finished my school course and eliminated a number of unnecessary medications. This sounded like it was worth 5 percentage points to me! 🙂 

July 27- August 4th 2013: Vacation to visit family. 3 1/2 hour car ride with 4 cousins under age 8. Hadn’t been able to handle that motion and stimuli for 1.5 years!

August 6th 2013: Four months free from syncope and oxygen depletion induced tremors!!!!!

August 8th 2013: Driver’s Permit Renewed

August 12th 2012: Wisdom Teeth removed (all four) So far a wonderful recovery!

Summary: I have one week until I move back and start my 2nd year at college! I am currently at 95% recovered & once I get my license I will move it up to 100%. Then I can only improve more! I have improved emotionally, physically, mentally, and spiritually more than I ever thought possible during these last four months! I will NOT be bringing my wheelchair to college this semester. I have started to run again. (small amounts usually .5 to 1 mile a week) This is still HUGE for me!

Here are some milestones that are tentatively in place!

August 19th 2013: My 19th Birthday

August 20th 2013: My Driver’s Test

August 21st 2013: Drive up and move back into school!

August 26th 2013: Start 2nd year of college!

October 25th 2013: Aruna 5k at UC!

Thanks again for reading and sending me comments! I know this update is long over due but I hope that it helps you on your path to healing!

POTS Treatment Center Information Packets

Below are multiple PDF packets of information I have scanned from the POTS treatment center. This is the basic information regarding how they treat and about the treatment as well as an elementary overview of the nervous system. I will get into more depth about each of these topics in the future.

Introduction to POTS Treatment Center: biofeedbackinfoptc.pdf

Diaphragmatic Breathing: Breathing &Breathing2

Cognitive Behavioral Therapy (retraining thoughts) :CBTInfo

Water: water benefits

Nervous System Overview: NervousSystemBasics

Home Program Packet: HomePrgmInfo

Temperature Sensor Packet: Temperature Packet

Documentation Templates:TemplatesPTC This includes food lists, exercise protocol, example of daily schedule, natural sleeping aids, and other recommendations as well as templates for tracking your progress.

Please leave comments if you have questions. I will expand greatly on each topic in the coming days! Enjoy!

Pots Treatment Center Website

I went to the POTS Treatment Center on May 6th for two weeks. I will be sharing my story in later posts. If you go to the website you can learn the basic information regarding this center. It has been the best decision I have made regarding my health. I urge you to read and research!

Here is the link:http://www.potstreatmentcenter.com

More to come soon,

Abbey

Shapewear

1. Compression stockings

Brand: Jobst

Type: Relief

Gradient of compression: 20-30 mmhg

Size: small

Color: Beige

Website: http://www.jobst-usa.com/products/medical-legwear/relief.html

I was fitted for my compression stockings in May of 2012, at my local Gould’s Discount Medical.

Website: http://www.gouldsdiscountmedical.com

I wear these in the winter! They help keep me warm and help control my blood pooling. I have learned to wear these when I am standing only or sitting for short periods of time. When I sit, they buckle around my knees and can become slightly uncomfortable. Over all, they are easy to wear, wash, and are a great product!

2.Top

Brand: Maidenform

Type: Control It!

Size: small

Color: beige

Website: http://www.kohls.com/product/prd-885361/control-it-by-maidenform-camisole-12599.jsp

I bought this product at my local Kohl’s. I love this top because of the gradation of compression throughout. It is easy to wear under my clothes and the fabric is comfortable. It is easy to wash as well. I love that it helps with blood pooling and shaping my figure at the same time!

3. Tank and Short combo

Brand: Spanx

Type: Assets Red Hot Label

Size: small

Color: beige, black, reversible

Tank:

http://www.kohls.com/product/prd-1312594/assets-red-hot-label-by-spanx-flipside-firmers-4-way-tank-1873.jsp

Short:

http://www.kohls.com/product/prd-1312597/assets-red-hot-label-by-spanx-reversible-mid-thigh-flipside-firmer-1874.jsp

I also bought these at my local Kohl’s. I love this pair because they have so many combinations. The top features a black scoop neck, black v-neck, beige scoop neck & beige v-neck depending on what color and side you wear in the front or back. The material is so comfortable and easy to wear. The bottoms can be beige or black and you can also switch which way you put them on. After a few wears your body will mold to the material and a distinct front and back will form. They are somewhat pricey, but durable and worth the investment. I will probably own these for the next 20 years.

5. Shorts

Brand: Maidenform

Type: Flexees, Fat Free Dressing

Size: Small

Color: Black, Beige

Black:

http://www.kohls.com/product/prd-684161/flexees-by-maidenform-fat-free-dressing-thigh-slimmer-1255.jsp

Beige:

http://www.kohls.com/product/prd-684161/flexees-by-maidenform-fat-free-dressing-thigh-slimmer-1255.jsp

These were the first pair of shape wear shorts I purchased. These were also bought at Kohl’s. I have had these for one and half years. They are still in great condition. The material is comfortable, but the waistband can be binding at times. The lace at the bottom can also be itchy against my skin and it leaves imprint markings. The lace however, adds a classy, sexy touch! I choose them in beige and black so that I could wear them with most items in my closet. I still wear them on occasion.

Ending Comments

I also wear leggings & bike shorts as part of my every day wardrobe. These do provide some compression as well as style! If you are interested in looking into compression/shape wear these are some great basics. As a reminder, one needs to be fitted for compression hose, and speaking with your doctor can help. Sometimes you can get a prescription for the hose and in turn, may help with the cost.

I wish you the best on your shape wear hunt! Comment below on your favorite shape wear/compression items!