I am terribly sorry that I have not updated for quite some time. I have traveled quite a bit and have wonderful news to share!
This post will be a list of goals and milestones that I have reached. I will expand on each goal in its own post!
Order of Milestones:
May 6th-17th 2013 Initial two-week expedited treatment: I left center at 70% improvement (I flew down in my wheelchair and on the trip back home I pushed my wheelchair with my suitcases in the seat)
June 6th 2013: First (0) on symptom chart!
June 8th 2013: Wean off Mestinon (took 9 days)
June 14th 2013: Completed exercise protocol goal of 22 minute workout on both recumbent bike and rowing for total of 44 minutes of exercise
June 16th 2013: Start weaning off Midodrine (took three weeks)
June 18-23 2013: Trip to NYC and (flying without wheelchair)
June 21st 2013: Rented bike and rode 6 miles all around Central Park in under 2 hours! 🙂
June 24th-31st 2013: Vacation and 2 days of rest from NYC trip
July 1-5th 2013: Follow-up week at POTS Treatment Center in Dallas, TX (Due to the 4th of July I decided to come for 4 sessions instead of 5. I did not want to double up on one day because I did not want to over do it. ) I left the center at 90% improvement!
July 8th 2013: Personal decision to stop several medications ( Florinef, Glycopyrrolate, Pro-biotic, Omeprozole, Flexeril,cephalexin) 0 adverse effects 🙂
July 19th 2013: Take college make-up course exam and PASSED!
July 20th 2013: 95% Improvement. I finished my school course and eliminated a number of unnecessary medications. This sounded like it was worth 5 percentage points to me! 🙂
July 27- August 4th 2013: Vacation to visit family. 3 1/2 hour car ride with 4 cousins under age 8. Hadn’t been able to handle that motion and stimuli for 1.5 years!
August 6th 2013: Four months free from syncope and oxygen depletion induced tremors!!!!!
August 8th 2013: Driver’s Permit Renewed
August 12th 2012: Wisdom Teeth removed (all four) So far a wonderful recovery!Summary: I have one week until I move back and start my 2nd year at college! I am currently at 95% recovered & once I get my license I will move it up to 100%. Then I can only improve more! I have improved emotionally, physically, mentally, and spiritually more than I ever thought possible during these last four months! I will NOT be bringing my wheelchair to college this semester. I have started to run again. (small amounts usually .5 to 1 mile a week) This is still HUGE for me!
Here are some milestones that are tentatively in place!
August 19th 2013: My 19th Birthday
August 20th 2013: My Driver’s Test
August 21st 2013: Drive up and move back into school!
August 26th 2013: Start 2nd year of college!
October 25th 2013: Aruna 5k at UC!
Thanks again for reading and sending me comments! I know this update is long over due but I hope that it helps you on your path to healing!