Sara and her sister have been diagnosed with the same condition that I have. Sara and Sara Spins her organization helped raise money for a wheelchair for me when I needed it to get to class in school. Sara currently uses a wheelchair anytime she is out of her home and her younger sister just got diagnosed. It has almost been one year since I went to the treatment center and I have never been better. Please consider giving to this fund and help change these girls lives! Thanks so much and more to come soon!
I am terribly sorry that I have not updated for quite some time. I have traveled quite a bit and have wonderful news to share!
This post will be a list of goals and milestones that I have reached. I will expand on each goal in its own post!
Order of Milestones:
May 6th-17th 2013 Initial two-week expedited treatment: I left center at 70% improvement (I flew down in my wheelchair and on the trip back home I pushed my wheelchair with my suitcases in the seat)
June 6th 2013: First (0) on symptom chart!
June 8th 2013: Wean off Mestinon (took 9 days)
June 14th 2013: Completed exercise protocol goal of 22 minute workout on both recumbent bike and rowing for total of 44 minutes of exercise
June 16th 2013: Start weaning off Midodrine (took three weeks)
June 18-23 2013: Trip to NYC and (flying without wheelchair)
June 21st 2013: Rented bike and rode 6 miles all around Central Park in under 2 hours! 🙂
June 24th-31st 2013: Vacation and 2 days of rest from NYC trip
July 1-5th 2013: Follow-up week at POTS Treatment Center in Dallas, TX (Due to the 4th of July I decided to come for 4 sessions instead of 5. I did not want to double up on one day because I did not want to over do it. ) I left the center at 90% improvement!
July 8th 2013: Personal decision to stop several medications ( Florinef, Glycopyrrolate, Pro-biotic, Omeprozole, Flexeril,cephalexin) 0 adverse effects 🙂
July 19th 2013: Take college make-up course exam and PASSED!
July 20th 2013: 95% Improvement. I finished my school course and eliminated a number of unnecessary medications. This sounded like it was worth 5 percentage points to me! 🙂
July 27- August 4th 2013: Vacation to visit family. 3 1/2 hour car ride with 4 cousins under age 8. Hadn’t been able to handle that motion and stimuli for 1.5 years!
August 6th 2013: Four months free from syncope and oxygen depletion induced tremors!!!!!
August 8th 2013: Driver’s Permit Renewed
August 12th 2012: Wisdom Teeth removed (all four) So far a wonderful recovery!Summary: I have one week until I move back and start my 2nd year at college! I am currently at 95% recovered & once I get my license I will move it up to 100%. Then I can only improve more! I have improved emotionally, physically, mentally, and spiritually more than I ever thought possible during these last four months! I will NOT be bringing my wheelchair to college this semester. I have started to run again. (small amounts usually .5 to 1 mile a week) This is still HUGE for me!
Here are some milestones that are tentatively in place!
August 19th 2013: My 19th Birthday
August 20th 2013: My Driver’s Test
August 21st 2013: Drive up and move back into school!
August 26th 2013: Start 2nd year of college!
October 25th 2013: Aruna 5k at UC!
Thanks again for reading and sending me comments! I know this update is long over due but I hope that it helps you on your path to healing!
Another wonderful news story spreading awareness about ME,POTS, and SaraSpins!
This so great!
Imagine you have a brother and he’s an alcoholic. He has his moments, but you keep your distance from him. You don’t mind him for the occasional family gathering or holiday. You still love him. But you don’t want to be around him.
This is how I lovingly describe my current relationship with the United States. The United States is my alcoholic brother. And although I will always love him, I don’t want to be near him at the moment.
I know that’s harsh, but I really feel my home country is not in a good place these days. That’s not a socio-economic statement (although that’s on the decline as well), but rather a cultural one.
I realize it’s going to be impossible to write sentences like the ones above without coming across as a raging prick, so let me try to soften the blow to my American readers with…
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This is my video from the Initial two-week treatment in Dallas. This should give you a better understanding of the program. 🙂
I am the second video in the playlist. Called 18year old college student