HOPE for Sara & Hope

http://www.gofundme.com/whitestonepotsfund

Sara and her sister have been diagnosed with the same condition that I have. Sara and Sara Spins her organization helped raise money for a wheelchair for me when I needed it to get to class in school. Sara currently uses a wheelchair anytime she is out of her home and her younger sister just got diagnosed. It has almost been one year since I went to the treatment center and I have never been better. Please consider giving to this fund and help change these girls lives! Thanks so much and more to come soon! 

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Three month update!

Hello everyone,

I am terribly sorry that I have not updated for quite some time. I have traveled quite a bit and have wonderful news to share!

This post will be a list of goals and milestones that I have reached. I will expand on each goal in its own post!

Order of Milestones:

May 6th-17th 2013 Initial two-week expedited treatment: I left center at 70% improvement (I flew down in my wheelchair and on the trip back home I pushed my wheelchair with my suitcases in the seat)

June 6th 2013: First (0) on symptom chart!

June 8th 2013: Wean off Mestinon (took 9 days)

June 14th 2013: Completed exercise protocol goal of  22 minute workout on both recumbent bike and rowing for total of 44 minutes of exercise

June 16th 2013: Start weaning off Midodrine (took three weeks)

June 18-23 2013: Trip to NYC and (flying without wheelchair)

June 21st 2013: Rented bike and rode 6 miles all around Central Park in under 2 hours! 🙂

June 24th-31st 2013: Vacation and 2 days of rest from NYC trip

July 1-5th 2013: Follow-up week at POTS Treatment Center in Dallas, TX (Due to the 4th of July I decided to come for 4 sessions instead of 5. I did not want to double up on one day because I did not want to over do it. ) I left the center at 90% improvement!

July 8th 2013: Personal decision to stop several medications ( Florinef, Glycopyrrolate, Pro-biotic, Omeprozole, Flexeril,cephalexin) 0 adverse effects 🙂

July 19th 2013: Take college make-up course exam and PASSED!

July 20th 2013: 95% Improvement. I finished my school course and eliminated a number of unnecessary medications. This sounded like it was worth 5 percentage points to me! 🙂 

July 27- August 4th 2013: Vacation to visit family. 3 1/2 hour car ride with 4 cousins under age 8. Hadn’t been able to handle that motion and stimuli for 1.5 years!

August 6th 2013: Four months free from syncope and oxygen depletion induced tremors!!!!!

August 8th 2013: Driver’s Permit Renewed

August 12th 2012: Wisdom Teeth removed (all four) So far a wonderful recovery!

Summary: I have one week until I move back and start my 2nd year at college! I am currently at 95% recovered & once I get my license I will move it up to 100%. Then I can only improve more! I have improved emotionally, physically, mentally, and spiritually more than I ever thought possible during these last four months! I will NOT be bringing my wheelchair to college this semester. I have started to run again. (small amounts usually .5 to 1 mile a week) This is still HUGE for me!

Here are some milestones that are tentatively in place!

August 19th 2013: My 19th Birthday

August 20th 2013: My Driver’s Test

August 21st 2013: Drive up and move back into school!

August 26th 2013: Start 2nd year of college!

October 25th 2013: Aruna 5k at UC!

Thanks again for reading and sending me comments! I know this update is long over due but I hope that it helps you on your path to healing!

Thanks for the comments!

I would like to thank each and every one of you who commented on my blog even if it was a language barrier! I put them all in google translate ( I know it probably isn’t the most accurate) nevertheless, it warmed my heart so much to see all the support and how this is helping you! I promise there will be more posts coming in the future! God Bless You all! 
In love,
Abbey